How does one measure whether a life was a success, or a failure?
By that standard my brother, Marshall Stephen Thomas, who
died January 5, was a failure. If, however, your standard for a successful life
is how that life positively touched others, then my brother's life was a
resounding success.
Shortly after he was born in 1950, Marshall was diagnosed
with Down syndrome. Some in the medical community referred to the
intellectually disabled as "retarded" back then, long before the word
became a common schoolyard epithet. His doctors told our parents he would never
amount to anything and advised them to place him in an institution. Back then,
this was advice too often taken by parents who were so embarrassed about having
a disabled child that they often refused to take them out in public.
Our parents wanted none of that. In the '50s, many
institutions were snake pits where inhumanities were often tolerated and people
were warehoused until they died, often in deplorable conditions. While they
weren't wealthy, they were committed to seeing that Marshall had the best
possible care, no matter how long he lived. Because of their dedication and
thanks to the Kennedy family and their commitment to the rights, causes and
issues related to the mentally and physically challenged, Marshall had a longer
and better quality of life than might have been expected. He outlived his life
expectancy by nearly 40 years. He lived his life dancing and singing and
listening to music he loved.
Yes, it cost our parents a lot of money to give him the care
they believed he deserved. They might have taken more vacations, owned a
fancier house and driven a luxurious car, but before we valued things more than
people, they valued Marshall more than any tangible thing. And that care rubbed
off on me and other family members.
The stereotype about people who call themselves
conservatives is that we don't care for the less fortunate. Even if that were
true (which it isn't), Marshall deepened my sensitivity and understanding for
the mentally and physically challenged and for those who, like our parents,
committed themselves to caring for others who were touched by a malady that
could easily have been ours.
I was seven years old when Marshall was born. A year or two
later when the diagnosis was made, I bought a popular book written by Dale
Evans and gave it to our parents. It was called "Angel Unaware." The
title was taken from a verse in the New Testament which says, "Do not
neglect to show hospitality to strangers, for thereby some have entertained
angels unawares." (Hebrews 13:2) Evans' book was about the Down syndrome
child she had with her husband, Roy Rogers.
Roy and Dale named their daughter Robin Elizabeth and their
commitment to her (she died at the age of 2) strongly influenced our parents'
decision to take care of Marshall, rather than institutionalize him. While it
was sometimes difficult for them and later after their death, for me, we never
regretted that decision because of the joy Marshall brought to our lives.
In an age when we discard the inconvenient and unwanted in
order to pursue pleasure and a life free of burdens, this may seem strange to
some. I recall a line from the long-running Broadway musical, "The
Fantasticks": "Deep in December, it's nice to remember, without a
hurt the heart is hollow."
Marshall Thomas' "hurts" filled a number of hollow
hearts.
At the end of the Christmas classic "It's a Wonderful
Life," George Bailey reads an inscription in a book given to him by
Clarence, his guardian angel: "Remember, no man is a failure who has
friends."
No life is a failure when it causes so many to care for
others. At that my brother succeeded magnificently.
Editor's Note: Unique Bodies~Determined Souls will be on break for the next month, and rerun in the interim our most popular posts over the last year. We return in November with news about how those we serve at Wendell Foster's Campus are stepping beyond limitations to become more of who they are, and how our staff supports them in moving towards greater independence and personal empowerment.
If any of these stories touch your heart, please share them with others through Facebook, Twitter or via email. We appreciate your support in helping us educate the public about how the individuals with developmental disabilities we serve overcome to find the "abilities" within them!
Thank you for reading!
Editor's Note: Unique Bodies~Determined Souls will be on break for the next month, and rerun in the interim our most popular posts over the last year. We return in November with news about how those we serve at Wendell Foster's Campus are stepping beyond limitations to become more of who they are, and how our staff supports them in moving towards greater independence and personal empowerment.
If any of these stories touch your heart, please share them with others through Facebook, Twitter or via email. We appreciate your support in helping us educate the public about how the individuals with developmental disabilities we serve overcome to find the "abilities" within them!
Thank you for reading!
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